Happy New Year

January 2nd is a day we will remember forever.  Not like a birthday. anniversary, holiday or celebration but one that impacted our lives forever.  One year ago today we found out our son has Duchenne Muscular Dystrophy (DMD).  A diagnosis that rocked our world.  Tomorrow our son will receive his first mobility scooter.  (There is a story here with lots of people to thank that I will touch upon later)


Never in our wildest dreams did we think we would have a child with a terminal illness.  Never did we think we would be excited to order a device like the above scooter for our child.  It’s surreal.  He is super excited as we have told him how great this is going to be.  We put a smile on our face and tell ourselves this is for the best and it is.  This will help him preserve his muscles.  This will give him independence.  This will help him keep up with his peers.  This will help him!  It has to!

We are doing the best we can.  We just hope it’s enough for our boy.

Each year for us is a blessing.  We are not complaining.  We have learned so much from this.  We have learned that there are wonderful, caring, thoughtful, compassionate people in this world.  We have learned that our family is a priority.  We have learned not to put off plans for the future.  We have learned that we need to experience life now as tomorrow isn’t promised.

We have learned that a hug is priceless.  This year, for Peyton and all DMD boys, hug your babies, parent’s, friends, co-workers and anyone you love.  You won’t ever regret it.



3 comments on “Happy New Year

  1. Barbi says:

    Love to you and your family. I am glad you were able to get the mobility device. It will help so much. If you need any other information we are always here to help. I work with all types of companies and one of the companies I worked with is Advanced Mobility in Van Nuys and they do all types of conversions if needed. They are one of the largest van conversion companies who are not very far from us. It is on Sepulveda.

  2. Phyllis Galitz says:

    Hi Bonnie, Ethan and Beautiful Boys – I don’t usually comment on Facebook but wanted you to know that I am following your blog and courageous journey with your precious Peyton. My heart is broken for all of you and I continually pray for your strength and the miracle needed to stop this insidious disease. Much love and only good things for this new year. Phyllis House-Galitz. xo

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s